OBJECTIVES: Using real-world data (RWD) dashboards, including Patient-Reported Measures (PRMs), is helpful in patient follow-ups and healthcare processes continuous improvement. Thus, both PROM/PREM are increasingly recorded and represented on dashboards. This aggregated RWD dashboard benefits real-time decision-making. We aim to communicate learnings and insights from elaborating PRM dashboards for their use.

METHODS: Research was based on professional insights gathered from four European hospitals and the European Innovative Medicine Initiative Health Outcomes Observatory (H2O) (2020-2024). Insights were collected through interviews. Professionals involved were recruited internally per institution, ensuring perspectives diversity. The professional profiles included clinical teams (Physicians, Nurses, Technicians, Pharmaceutical professionals), managerial profiles, Information System Coordinators, Quality of care experts, and PRM experts.

RESULTS: Our research included the development of more than 13 disease PRMs dashboards. The feedback was categorised as follows: 1)Most liked headings focused on the evolution of 2-3 average whole questionnaire scores (e.g. before/after surgery, or at each treatment/cycle momentums) in 2023 vs 2024. 2)Aid with the maximum-minimum values and a benchmark from similar literature was appreciated; 3)PRM items are not always easily transformed into practical labels, so “maximum-20-characters” pacts were useful. 4)Presenting a maximum of seven items and Likert levels per figure with colours connected with positive, negative or neutral results in 100% stacked-column charts resulted efficient. 5)Combining a maximum of seven tables/figures and always transmitting the number of respondents yielded good feedbacks. 6)Managers/PRMs experts were especially interested in spider figures, average number of alerts for monitoring and derivations, and selecting by age, gender, service or ICD10-diagnosis, 7)Care delivers wished reproducing in real-world-data usual trial figures.

CONCLUSIONS: Analysing different institutions experience working on VBHC provided valuable insights for future dashboard development. Well-designed inclusive dashboards with clinical and patient-reported information demonstrate potential to develop care improvements based on follow-up real-world status assessments.