Mission

To facilitate engagement and partnership of patients in all stages of health-related research and care delivery to improve healthcare access and patient outcomes​.

Background

Patients are a distinct stakeholder group. Outcomes research is rapidly evolving and major changes are already being implemented. One common feature is the agreed consensus on the importance to obtain the input of patients in all processes in the value assessments of medicines for society.


Manuscript and Reports

  1. Llewellyn S, Qiao N, Masurkar P, Botto-van Bemden A, Roydhouse J, Perfetto E. Quality of patient engagement activities in health economics and outcomes research: insights from the ISPOR community. Value Outcomes Spotlight. 2024;10(6):41-45.
  2. Harrington R. L, Hanna M, Oehrlien E.M, et al. Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group. [Editor’s Choice] Value in Health 2020;23(6):677-688
  3. Camp R, Wheeler R, von Gizycki R, and McBurney, R. From the Patients: Defining Patient Engagement in Research. Value & Outcomes 2020;6(4)
  4. Harrington, R, Hareendran, A, Scott, A, et al. Patient Engagement in Health Outcomes Research: A Snapshot from the ISPOR Community. Value & Outcome Spotlight 2016;2(5):11-14

Webinars

  1. Patient Involvement in Value and Health Technology Assessment (V/HTA)
  2. Patient Engagement in Research: An ISPOR Definition
  3. Qualitative Content Analysis Training
  4. FDA Patient-Focused Drug Development (PFDD) Guidance - Part 1
  5. FDA Patient-Focused Drug Development (PFDD) Guidance - Part 2 

More Webinars


Presentations 

  1. ISPOR 2025: Health Preference Research Today: How Patient-Centered Is It and How Can It Be More Patient-Centric?
  2. ISPOR Europe 2024: Integrating the Patient Voice Into Economic Assessments of Health Technologies
  3. ISPOR ​2024 “Patient-Centered Research” ​Special Interest Group Joint Open Meeting​

More Presentations



Leadership


Chair

Nan Qiao, MSc, PhD, MBBS, MPH

Director, Merck & Co. Inc
Lansdale, PA, United States

Past Chair

Jessica Roydhouse, PhD, BA, MPH

Select Foundation Senior Research Fellow in Health Services Research, Menzies Institute for Medical Research, University of Tasmania
Hobart, TAS, Australia

Chair-Elect


Operational Lead


Working Groups:

Member Engagement

These activities allow for a variety of members to participate and also facilitates disseminating content in Webinars, Journal Clubs, Conference Sessions, etc.

Co-Chairs

Nora Fayed

Associate Professor, Queen's University
Kingston, ON, Canada

Sam Llewellyn, BSc

Director, Patient Centered Research, Vitaccess
Richmond, LON, United Kingdom

Elizabeth Manias, RPh, RN, PhD

Professor (Research) and NHMRC Leadership Fellow, School of Nursing and Midwifery, Monash University
Kew, VIC, Australia

Radha Sharma

Senior Consultant (Director), ConnectHEOR
Edmonton, AB, Canada

Questions or ideas? Please send an email to patientsig@ISPOR.org

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