To facilitate the involvement of patient representatives in all stages of research and decision making to improve health care, its delivery, and outcomes.


Patients are a distinct stakeholder group. Outcomes research is rapidly evolving and major changes are already being implemented. One common feature is the agreed consensus on the importance to obtain the input of patients in all processes in the value assessments of medicines for society.

Working Groups:

Key Project

Patient Engagement in Research


  • Rachel Harrington, Pre-Doctoral Fellow, Institute for Health Research and Policy / College of Pharmacy, University of Illinois at Chicago, Chicago, IL, USA

Work Products

  1. Qualitative Content Analysis Training Webinar
  2. Patient Engagement in Health Outcomes Research: A Snapshot from the ISPOR Community