Mission
To facilitate the involvement of patient representatives in all stages of research and decision making to improve healthcare, its delivery, and outcomes.
Background
Patients are a distinct stakeholder group. Outcomes research is rapidly evolving and major changes are already being implemented. One common feature is the agreed consensus on the importance to obtain the input of patients in all processes in the value assessments of medicines for society.
Manuscript and Reports
- Harrington R. L, Hanna M, Oehrlien E.M, et al. Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group. [Editor’s Choice] Value in Health 2020;23(6):677-688
- Camp R, Wheeler R, von Gizycki R, and McBurney, R. From the Patients: Defining Patient Engagement in Research. Value & Outcomes 2020;6(4)
- Harrington, R, Hareendran, A, Scott, A, et al. Patient Engagement in Health Outcomes Research: A Snapshot from the ISPOR Community. Value & Outcome Spotlight 2016;2(5):11-14
Leadership
Chair
Jessica Roydhouse, PhD, BA, MPH
Select Foundation Senior Research Fellow in Health Services Research, Menzies Institute for Medical Research, University of Tasmania
Hobart, TAS, Australia
Past Chair
Eleanor Perfetto, MS, RPh, PhD
Professor, University of Maryland Baltimore Pharmaceutical Health Services Research Department
VENICE, FL, United States
Chair-Elect
Nan Qiao, MSc, PhD, MBBS, MPH
Director, Merck & Co. Inc
Lansdale, PA, United States
Operational Lead
Sam Llewellyn, BSc
Associate Director, Patient Centered Research, Vitaccess
LON, United Kingdom
Working Groups:
Member Engagement
These activities allow for a variety of members to participate and also facilitates disseminating content in Webinars, Journal Clubs, Conference Sessions, etc.
Co-Chairs
Angie Botto-van Bemden
Patient Partner, Musculoskeletal Research International
Holiday, FL, United States
Prajakta Masurkar, PhD
HEOR Senior Manager, Amgen Inc.
Milton, GA, United States